Together, our voices can echo throughout the ALK+ NSCLC community
ALKConnect is a patient registry specifically designed for patients with anaplastic lymphoma kinase positive (ALK+) non-small cell lung cancer (NSCLC). Use this platform to share your experiences, access data and insights from the registry, and learn more about new clinical trials in the ALK+ NSCLC space. Your participation may help us discover findings to improve patients' lives.
Every disease community should have a common, accessible patient registry.
We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community.
But registries are hard to maintain.
Registries are expensive. They need constant upkeep - usually by people with a lot of expertise in disease and data management. Often there are multiple competing registries for one disease, which leads to siloed, dead-end data that nobody can use.
Patient Crossroads is here to fix all of that.
Our CONNECT platform enables anyone - from individual patients to global research organizations - to collect and share disease data in a way that’s controlled, transparent and centered on patients’ best interests.
