Together, our voices can echo throughout the ALK+ NSCLC community
ALKConnect is a registry specifically designed for people with anaplastic lymphoma kinase positive (ALK+) non-small cell lung cancer (NSCLC). Use this platform to provide researchers and clinicians information regarding your experiences, access data and insights from the registry, and learn more about new clinical trials in the ALK+ NSCLC space. Your participation may help us discover findings to improve lives.
Every disease community should have a common, accessible patient registry.
We’ve heard over and over that creating a shared registry of patients is one of the most valuable things a disease community can do. A registry puts critical information about a disease all in one place. This makes it easier for researchers to study the disease, for patients to learn about front-line treatments and for advocates to speak on behalf of the disease community.
But registries are hard to maintain.
Registries are expensive. They need constant upkeep - usually by people with a lot of expertise in disease and data management. Often there are multiple competing registries for one disease, which leads to siloed, dead-end data that nobody can use.
Patient Crossroads is here to fix all of that.
Our CONNECT platform enables anyone - from individual patients to global research organizations - to collect and share disease data in a way that’s controlled, transparent and centered on patients’ best interests.
